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Dads take “dares for donations” on cross-country trip raising money for SYNGAP1 research & More Latest News

 

NEW YORK — Friday, some fathers took off from New York City for a nonstop drive throughout the nation to boost money for their sons’ uncommon genetic illness. 

CBS2’s Natalie Duddridge caught up with them on their recreation show-themed journey. 

Three dads and a videographer taking part in a ukulele packed right into a automobile for what looks as if the street trip of a lifetime.

But these dads – Kevin Frye, Peter Halliburton and Brett Stelmaszek, from completely different corners of the nation – are taking dares for donations on a lifesaving mission for their sons. 

“My son Nathan is five. Nathan was diagnosed with SYNGAP Christmas 2020, so he was three,” mentioned Frye, from Oxford, Mississippi. 

“My son Carter was diagnosed in 2019 at 26 months old,” mentioned Halliburton. 

“My son Emmett, he’s five years old. He got diagnosed with SYNGAP in May of 2019 when he was 18 months old,” mentioned Stelmaszek. 

SYNGAP1 is a neurological dysfunction with no present treatment or actual remedy. 

“When it comes to the seizures, he still has over 100 per day even though he’s on eight antiepileptic medications. He’s on 15 medications total,” mentioned Stelmaszek.

“Nathan’s a happy, fun little kid. But he’s got a lot of difficulties in life,” mentioned Frye.

This is the second yr these dads are taking this fundraising street trip. It’s a 3,000-mile route from New York to California. While many drive it to set pace data, these dads drive the pace restrict. The solely file they need to beat is their very own: $150,000 raised final yr. 

Friends and strangers can basically problem them for a value on the “Wheel of Consequences” because it’s streamed on-line. The dares result in fascinating hairstyles and colours, but it surely’s properly value it for their boys and research. 

“We’re definitely not going to look like we look like right now, but it’s all for fun. It’s all to help raise money for our kids,” mentioned Halliburton. 

With about 2,500 miles to go and about 35 hours of driving, there’s nonetheless plenty of time left to donate. 

Click right here to observe their journey.

Dads take “dares for donations” on cross-country trip raising money for SYNGAP1 research

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Dads take “dares for donations” on cross-country trip raising money for SYNGAP1 research

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Dads take “dares for donations” on cross-country trip raising money for SYNGAP1 research

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