AAN Seeks Swift Government Actions on Albinism Related Health Crisis

The call came as the world marked World Cancer Day on February 4, 2025 under the theme United by Unique.

In a statement signed by the president of the association, Mrs Bisi Bamishe, the group said, “Our people are dying in silence, with little to no awareness of the immense health challenges we endure, particularly the devastating impact of skin cancer.

“Despite our continuous advocacy efforts, the plight of persons with albinism remains largely unaddressed, and the consequences are dire. Within just a few days, we have lost three of our beloved members to this ravaging disease.”

The group highlighted the graveness of the issue, adding that, many others are battling for their lives without access to proper medical care.

“The grim reality is that the community of persons with albinism in Nigeria is under siege, and urgent action is required to prevent further loss of lives.”

AAN used the calender event to call on the government across several tiers to join the fight and improve their inputs.

“The absence of structured government interventions, including access to free or subsidized skin cancer treatments, preventive measures such as sunscreen distribution, and specialized dermatological care, has left our community in a state of despair. Without immediate action, we will continue to witness the preventable deaths of our members,” the group lamented.

“We call on the federal, state, and local governments, the legislative arms at all levels, well-meaning individuals, local and international donors, and relevant stakeholders to stand with us in the fight against this dreaded disease,” it added.

It also noted that it has not rested on its oars with it’s multiple approach to raise awareness about the pressing health needs of persons with albinism.

“We have engaged policymakers, health authorities, and legislators, urging them to implement sustainable policies that will ensure access to affordable healthcare, routine skin cancer screening, and the provision of lifesaving treatments for affected persons.

“However, the time for mere discussions has passed. We need tangible, swift, and decisive actions to save lives,” the group added.

The association lauded the efforts and responsiveness of the Lagos State government and called on other states to follow in its footsteps.

“We must acknowledge the efforts of some state governors, development partners and NGOs that have done a lot for us. Special appreciation goes to Lagos State Government that has spent over N20 million on skin cancer patients in the last two years as well as provision of sunscreen, hats and umbrellas. We hope other states can follow suit as much as possible.”